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October 30, 2008

Bingo night benefits CV girl

Fight with kidney dis wit ease has been a long haul

By MICHELLE MILLER
Staff Writer

CHERRY VALLEY — Last Friday night, the Cherry Valley- Springfield student council held a fundraiser to benefit six-year-old Grace Utter who is fighting a kidney disease.

According to student council volunteer and CV-S teacher Melissa Jaquay, the night was a success with amazing community support. She said the school gymnasium was filled with over 250 people playing Bingo from 7:15 to 10:30 p.m.

Jaquay said the event raised over $5,300 and there were over 91 gift baskets given out as prizes. The gift baskets were donated by the community, school groups and sports teams.

Grace was able to attend the fundraiser for a little while, according to Jaquay.

Grace’s mother Jodi wrote in a journal entry posted at www.caringbridge. org/visit/graceutter that she was in complete `awe’ of what she saw at the school before the fundraiser took place.

``I can honestly say that I had no idea what ‘Basket Bingo’ entailed,’’ she wrote.

``You cannot begin to imagine what this amazing school has put together. We are so excited that we are home so that we can be there to see the many friendly faces that we’ve missed over these past few months. Our community is amazing and continues to pour out their love and support for Gracie and our family. How can we possibly say thank you enough,’’ she added.

Jodi had been renting a small room in Boston so Grace could receive care for a rare kidney disease, focal segmental glomerulosclerosis. The condition is one of many diseases that affect kidney function by attacking the glomeruli, which are the tiny units within the kidney where blood is cleaned.

Fighting the disease has been a long haul, said Jodi, whose daughter began having kidney problems at age 2 1/2.

Grace received a kidney transplant Aug. 26 at Boston Children’s Hospital in Massachusetts. The following day, doctors told the Utter family the disease was attacking Grace’s new kidney. The kidney was removed in September.

``It was devastating, it was horrible,’’ Utter said. ``The disease literally destroyed her kidney within 12 hours.’’

She said because there is little information on the disease and because it is so aggressive, Grace cannot get another kidney transplant for another eight to 10 years. Grace will have to be on di- alysis for 12 hours every night until then, her mother said.

According to Jodi, Grace will have to go to Boston at least once a month for care. She will also have to visit if she experiences a fever or stomach pain in order to rule out infection, she added. Jodi said the cause of her daughter’s kidney disease is unknown.

``Like a snap of a finger, it was there,’’ she said. She said community support has been overwhelming. For more about Grace’s condition, visit www.caringbridge. org/visit/graceutter.

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